Prostate Cancer Support Organizations
Last Revised May 15, 1997
{NOTE: Since this was written, more groups have formed and changes made. Every attempt was made to update contact information but Phoenix5 cannot guarantee the accuracy. For a more current list, visit the Support Groups page and the Web Sites Page at Phoenix5.]
Introduction |
National Prostate Cancer Coalition |
US prostate cancer support organizations |
Australian prostate cancer support organizations |
Canadian prostate cancer support organizations |
European prostate cancer support organizations |
General cancer support and information organizations
Introduction
Having any form of cancer can be very difficult and emotionally trying. Many cancer patients find great value in participating in support groups. Support group members can give each other advice on the forms of treatment to consider, physicians who provide good care and wise advice, and many other matters involving how to deal with family and friends.
We also know that having a support network may well be helpful in itself. One notable study has suggested that women treated for breast cancer who participated regularly in the activities of breast cancer support groups survived longer than those who did not! It is probably true that discussing personal issues with other prostate cancer patients who have already had to deal with these issues themselves is valuable. Of course, the sort of support that different people seek varies from person to person. The organizations listed below will all most likely be willing to help you but you need to choose an organization which best suits your personal needs.
The National Prostate Cancer Coalition
The National Prostate Cancer Coalition is a US-based
organization dedicated to bringing together and representing the interests
of multiple organizations and individuals with an interest in the prevention
and the cure of prostate cancer. It is not a support group per se,
but most of the US-based support groups are represented in some way within the
Coalition.
- Address: National Prostate
Cancer Coalition, 1158 15th Street, Washington, DC 20005
- Tel: (202) 463 9455
US prostate cancer support organizations
US-TOO International is one of the largest patient-organized support groups dedicated exclusively to prostate disease. It has local chapters all across America and is primarily focused on patient support, fellowship, and counseling.
- Address: US-TOO International, 5003 Fairview Avenue, Downers Grove, IL 60515 (USA)
- Tel: (630) 795-1002
- Fax: (630) 795-1602
- Support line: (800) 808-7866
The American Prostate Society is
dedicated to encouraging the detection and treatment of prostate cancer
before it becomes incurable, and thereby cutting prostate cancer deaths by 50%.
- Address: The American Prostate Society, 7188 Ridge Road, Hanover, MD 21076
- Tel: (410) 859 3735
- Fax: (410) 850 0818
- E-mail: American Prostate Society
CaP CURE is an association founded by Michael Milken to support research for effective prevention and treatment of prostate cancer.
- Address: CaP CURE, 1250 Fourth Street, Suite 360, Santa Monica, CA 90401
- Tel: (800) 757-CURE
- Fax: (310) 458-8074
- E-mail: capcure@capcure.org
Patient Advocates for Advanced Cancer Treatments (PAACT) focuses on providing information and resources for patients seeking new forms of cancer therapy.
The Matthews Foundation for Prostate Cancer Research is an independent foundation dedicated to raising money for prostate cancer research and founded in memory of a prostate cancer patient.
- Address: The Matthews Foundation for Prostate Cancer Research, 11242 NE 58th Street, Kirkland, WA 98033-7518
- Tel: 800-234-6284, 425-893-9657
Women's Suffrage for Prostate Cancer Awareness is an organization
dedicated to support of
women and families of prostate cancer patients, to promotion of awareness
through
education and provide resources,and to unite women as a sisterhood to bring
awareness to the public of the effects of prostate cancer in their lives.
Cancer Care Inc., in association with the Prostate Cancer Education Council, offers information and counseling on prostate cancer to patients and their families. They can also sometimes provide assistance with non-medical expenses. While this is primarily a series of services for patients in the greater New York area, informational services can be accessed across the country.
- Address:
Cancer Care, Inc - National Office
275 7th Ave - New York, NY 10001
- Tel: 212 302 2400 - 1 800 813 HOPE (4673)
Australian prostate cancer support organizations
St Vincent's Prostate Cancer Support Group offers information
and counseling on prostate cancer to patients and their families.
- Address: St Vincent's Prostate Cancer Support Group, P O Box 461, Double Bay, New South Wales 2028, Australia
- Tel: 61 2 9363 9343.
- Fax: 61 2 9363 4044
Canadian prostate cancer support organizations
The Canadian Prostate Cancer Network is
a network of prostate cancer support organizations across Canada that can
provide appropriate referrals to patients and their families.
- Address: The National Association of Prostate Cancer
Support Groups, P.O. Box 1253, Lakefield, ON K0L 2H0, Canada
- Fax: (705) 652 0663
- E-mail: Canadian Prostate Cancer
Network
PSA Victoria [The Prostate (Cancer) Support Association of Victoria] is a support program of the Canadian Cancer Society providing information and support to prostate cancer patients and their families in Victoria, British Columbia.
The Prostate Group of the Cancer Support Network is a support program of
the Victorian Order of Nurses, and offers information and support
to patients and their families in Ontario.
- Address: Cancer Support Network/Prostate Group, 205 Second Street East, Cornwall, Ontario K6H 1Y6, Canada
European prostate cancer support organizations
The Prostate Cancer Charity
is a major UK-based prostate cancer charity that includes patient support programs
providing information to prostate cancer patients and their families.
- Address:
- Tel: 0181 383 1948
- Fax:
ProLiv Prostate Cancer Group is a fast growing Swedish prostate cancer support organization based in Goteborg.
General cancer support and information organizations
The American Cancer Society offers a huge range of services and literature to patients with cancer and their families. This organization has chapters all across America which can sometimes provide additional, helpful services such as transportation. Use the society's Web site or look in the white pages of your local telephone directory for the number of your nearest chapter.
The National Cancer Institute is the national center for cancer research in the US and provides extensive information on all cancers and their treatment, including information on clinical trials of new forms of therapy. The National Cancer Institute is an important resource for a range of information on prostate cancer, much of which can be accessed through OncoLink.
The National Coalition for Cancer Survivorship is dedicated to providing advocacy for cancer survivors in the workplace, with particular emphasis on issues of discrimination.
- Address: National Coalition for Cancer Survivorship, 1010 Wayne Avenue, 5th Floor, Silver Springs, MD 20910
- Tel: (301) 650 8868
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